Juma was a healthy child until age two, when he developed Xeroderma Pigmentosum, a rare skin condition. Managing the condition was challenging, he had to avoid sun exposure and wear full-body clothing even in the hot, humid coast.
In 2025, Juma developed swelling on his head, which was diagnosed as squamous cell carcinoma, a type of skin cancer. The diagnosis was devastating for his family, bringing fear, financial strain and emotional exhaustion.
Through a Hospice Care Kenya project, Juma received pain relief, home-based support, guidance on cancer treatment and counselling for his parents. They were also linked with another family facing a similar condition, easing isolation and stigma.
Today, Juma’s pain is controlled, cancer treatment is ongoing and his parents feel empowered and supported.
“I can’t believe my child can sleep the whole night without crying in pain,” says his father.
“It is a relief to understand this is a medical condition and not a curse,” adds his mother.
Juma’s story highlights how palliative care can bring relief, understanding and hope to children and families facing rare and life-threatening conditions.
Please donate today to help more children and their families, like Juma.